Management of Memory Loss or Cognitive Malfunction is

no longer a Secret

Memory failure is well documented as a symptom of CFS/FM and sometimes the devastating effect on the sufferer is alluded to, but it is actually terrifying - you cannot recall the simplest things that you know so well, and start to believe that you cannot function as a person as such a basic attribute has disappeared.

- from introduction to Memory Loss

Inability to articulate is the result of various cognitive functions not performing. We cannot understand what is said to us, we cannot fathom words, pictures or diagrams, we cannot call on our former vocabulary and even simple words elude - if we dare to speak it is likely to be gibberish. When we are able to seize a word, pronunciation often goes haywire. Our confidence evaporates, we become mute.

- from introduction to Cognitive Malfunction

"These are the things I wish someone had shared with me"

- Anne, Author

Selections taken from this book

More recently, I have been using a PDA/Pocket PC as my ‘memory’. It is a miniature computer and phone that is easily popped into a pocket or bag, or clipped to a waistband. The best feature is that it comes with a multitude of alarms and reminders. Each alarm has a subject field attached so when alerted to something, they also tell me what to do!

More permanent alarms can be set for a time for every day of the week for regular items, such as “Take p.m. supplements” with other alarms that can be set as required such as “Phone Betty”.

memory loss

 

Routines are extremely important to CFS/FM sufferers as they conserve extremely limited energy as well as help avoid aimlessness where despondency or depression can easily gain control. Routines allow us to get through fog-bound days much more easily and provide a framework that means that we can take greater control. Wandering about the place wondering is not an uplifting experience!

Symptoms

'Real World'
Activities
Friends & Relatives
Travel
Create Energy!
Diet
Supplements
Exercise (CFS/FM Style)

 

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