Management
of Memory
Loss
or Cognitive Malfunction is
no
longer aSecret
Memory failure is well
documented as a symptom of CFS/FM and sometimes the
devastating effect on the sufferer is alluded to,
but it is actually terrifying - you cannot recall
the simplest things that you know so well, and start
to believe that you cannot function as a person as
such a basic attribute has disappeared.
-
from introduction to Memory Loss
Inability to articulate
is the result of various cognitive functions not
performing. We cannot understand what is said to
us, we cannot fathom words, pictures or diagrams,
we cannot call on our former vocabulary and even
simple words elude - if we dare to speak it is likely
to be gibberish. When we are able to seize a word,
pronunciation often goes haywire. Our confidence
evaporates, we become mute.
-
from introduction to Cognitive Malfunction
"These are the things I wish someone
had shared with me"
More recently, I have been using a PDA/Pocket
PC as my ‘memory’. It is a miniature computer and
phone that is easily popped into a pocket or bag, or clipped
to a waistband. The best feature is that it comes with a multitude
of alarms and reminders. Each alarm has a subject field attached
so when alerted to something, they also tell me what to do!
More permanent alarms can be set for a time for every day of the week
for regular items, such as “Take p.m. supplements” with other
alarms that can be set as required such as “Phone Betty”.
Routines are
extremely important to CFS/FM sufferers as they conserve extremely
limited energy as well as help avoid aimlessness where despondency
or depression can easily gain control. Routines allow us to get
through fog-bound days much more easily and provide a framework
that means that we can take greater control. Wandering about
the place wondering is not an uplifting experience!
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